FIRST to Know
Have you been on a FIRST to Know? It's a great way to connect...
Why Join A FIRST to Know Event?
Sharing tips, stories and challenges with others, makes living with ichthyosis just a little bit easier. The FIRST to Know events are a great way to “meet” other families and individuals. Each event is centered on a topic or subject, and lasts for one hour. You can decide which topic is interesting to you and join in. You can be an active participant, or listen to what others are saying. Do you have an idea for a FIRST to Know topic? Contact the FIRST office via email or by telephone at 1-800-545-3286.
The past FIRST to Know events have been well received by our members. It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. This is a great way to "meet" other individuals families. All events are held in Eastern time. We now have the opportunity to participate via video. So you can either call in on your phone, or video call from your smart phone or a computer.
CLICK HERE For Upcoming Topics & Dates
Tips on how to make the most of the FIRST to Know Event
- Join from a quiet location.
- Consider keeping your phone/computer on mute (by pressing *6) to keep out extraneous background noise.
- You'll want to have as strong a connection to the conference as possible.
Past Events
2023
Dr. Leonard Milstone Retinoids and DISH - October 24, 2023
Yoga for Ichthyosis Series
- Joint Freeing Series
Class 1 - March 20, 2023
Class 2 - April 3, 2023
Class 3 - April 17, 2023
- Mindful Movement
Class 1 - March 27, 2023
Class 2 - April 10, 2023
Class 3 - April 24, 2023
2022
Ichthyosis & Adaptive Activities - May 16, 2022
Ichthyosis & Yoga - March 28, 2022
Ichthyosis & Insurance - February 8, 2022
2021
Ichthyosis & College - October 19, 2021
SUPPORTED THROUGH A GRANT FROM BEIERSDORFIchthyosis & Career Mentoring - June 29, 2021
SUPPORTED THROUGH A GRANT FROM BEIERSDORFIchthyosis & Mental Health - May 31, 2021
SUPPORTED THROUGH A GRANT FROM BEIERSDORF
2020
FIRST to Know: Marc Benedetto, NYPD - November 2, 2020
Ichthyosis & Adoption - October 5, 2020
Ichthyosis & Activities - August 27, 2020
Ichthyosis & School - August 3, 2020
What's New in Ichthyosis Research? - May 21, 2020
