Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast and lunch.

Meet-ups held in 2023

• St. Louis, MO: April 1, 2023
• Tampa, FL: May 6, 2023
• Seattle, WA: September 30, 2023

FIRST's 2023 One-Day Meetings are Sponsored by Beiersdorf

Meeting Held in 2021

• Rehoboth Beach, DE: November 13, 2021