You are not alone.

FIRST has numerous ways to connect with other families, individuals, and ichthyosis experts! Our national conferences, patient support forums, FIRST to Know and FIRST Connects calls and video events, and Facebook Groups are a great way to find tips, ask questions, make friends and meet medical experts that are truly “in the know” about your condition. Connecting with the others can make all the difference in coping and living with your condition.