FIRST hosts a 3-day national conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.

National Conferences are a fantastic opportunity for affected individuals and their families to meet and network with other affected individuals and consult with leading medical experts.  They connect those searching for information and support in living wih ichthyosis and related skin types.

The 22nd National Conference is planned for June 28-30, 2024!

Get the information here

Previous conferences: 2022 - Providence, RI; 2018 - Nashville, TN; 2016 - San Diego, CA; 2014 - Indianapolis, IN; 2012 - Denver, CO; 2010 - Orlando, FL; 2008 - Chicago, IL; 2006 - Atlanta, GA; 2004 - Kansas City, MO; 2002 - Seattle, WA; 2000 - Philadelphia, PA; 1998 - Cherry Hill, NJ; 1995 - San Diego, CA; 1993 - Chicago, IL; 1991 - Williamsburg, VA; 1990 - Orlando, FL; 1988 - New Haven, CT; 1986 - New Orleans, LA; 1985 - Las Vegas, NV; 1984 - Washington, DC; 1983 - Chicago, IL