Amplifying the Voices of Children and Young People Living with Rare Diseases
Date: 02/29/2024
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1 in 17 people will experience living with a rare disease at some point in their lives, and about 70% of Rare Diseases afflict children, young people, and their families, with a significant portion being chronic conditions. 35% of these conditions are life-limiting or life-threatening, often leading to premature death. Read more here.
