How to Support the Mental Health of Patients With a Rare Disease
Date: 08/20/2024
(1).png)
Manuela Callari, PhD | July 22, 2024
The shock of being diagnosed with a rare disease or having a child or a loved one with a rare disease can be overwhelming and requires a lot of adjusting, Dr. Freedman said. “It’s very disorienting to find yourself with a life that is different than the life you expected to have. Your needs are very unusual because of the unusual nature of the disease.”
https://www.rarediseaseadvisor.com/features/mental-health-support/?
