Date: 09/14/2023

A day I don’t think we will ever forget.

Our son Logan was born with ichthyosis just under 3 years ago. It is a skin condition with varying degrees of severity (Logan has ARCI-lamellar ichthyosis or ARCI-LI).

The @foundationforichthyosis was mentioned to us a few hours after he was born and we shook it off. What could a foundation do for us? We will handle this on our own. We could not have been more wrong. Our family attended our first FIRST conference in Providence last year and right then and there we knew we needed to do something to help support them.

On September 9th, we held a cornhole tournament fundraiser to support FIRST. We were anxious, overwhelmed, unsure if we knew what we were getting into as more and more people showed interest. All of that melted away when the day came. We couldn’t even begin to thank every person who had a hand in helping us and taking a little off our plate, the list is endless.

This picture is the reason we held the fundraiser and why FIRST is so important to us. Five individuals with ichthyosis met together to share a common goal, raise awareness for their skin condition. Along with those five were 95 other individuals there to support, love, and have a great time together.

We raised close to $14,000 for this fundraiser. We can’t look at that number and not tear up. We are the luckiest people on earth to have such incredible individuals supporting us and this foundation!

Thank you all!!! We love you!

Tips for Creative Fundraising:

• Remember people are eager to connect
• Everyone has different boundaries – allow for many choices in participation
• Food, entertainment, and information are universal draws
• Use technology to get the word out and tell your story
• Contact FIRST to build a fundraising page

To learn more about hosting a fundraiser Contact Denise Gass at FIRST