Everyday can be a challenge, from the cold with dry, sensitive skin, to overheating even in mild weather. But just learning to roll with the punches and being able to accomplish what you want makes it worth it. FIRST is good because it shows you that you are not the only one with the issues that ichthyosis brings.
 

What's Your Story? We'd Love to Hear It!

« Back to Meet Our Families

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.